30 Things you did not know about my Invisible Illness: Lupus & ME
1. The illness I live with is:
2. I was diagnosed with it in the year:
3. But I had symptoms since:
4. The biggest adjustment I’ve had to make is:
Getting use to chronic pains, Constant hospital visits, Taking lots and lots of pills, surgery, being bed bound, finding something new that my lupus has caused.
5. Most people assume:
I am very healthy and I am all happy and that I am not really in pain.
6. The hardest part about mornings are:
Fighting to get up, all the pain in the morning is awful I hate mornings with a passion.
7. My favorite medical TV show is:
I have no idea, i love the ID channel lol and cartoons.
8. A gadget I couldn’t live without is:
9. The hardest part about nights is:
Insomnia, pain, knowing that I am not getting enough sleep and dreading the pain that the morning will bring.
10. Each day I take __ pills & vitamins:
I’m taking 10 pills. I should be taking around 15+ but my tummy has not been doing so well.
11. Regarding alternative treatments I:
I’m down for anything that will help
12. If I had to choose between an invisible illness or visible I would choose:
I would chose neither, I would chose to be healthy. But the again I would stay with that I have I feel that God has given me this path and I would rather have me walk it then someone I love.
13. Regarding working and career:
Worried. Because my illness slows me down, it makes me weak. I worry I might not make it to a place where I want to be or do an amazing job. I do not feel good enough.
14. People would be surprised to know:
The seriousness of my disease, how much stress and panic I am under. My range of emotions and health. My life is a roller coaster.
15. The hardest thing to accept about my new reality has been:
I’ll never have what you call a “normal” life, and to have a family in the future scares me because I do not feel I am capable of providing for my family. Will I make a good mother/wife? Do I make a good girlfriend/friend/daughter/sister now?
16. Something I never thought I could do with my illness that I did was:
Walk a 5k, work, travel
17. The commercials about my illness:
Not really any commercials out there.
18. Something I really miss doing since I was diagnosed is:
Sleeping, going out on the weekends, waking up feeling rested.
19. It was really hard to have to give up:
My weekends, fatty foods, McDonald french fries, my hair
20. A new hobby I have taken up since my diagnosis is:
Bringing Lupus awareness
21. If I could have one day of feeling normal again I would:
GO crazy with joy and have a great day, bbq party at my house!
22. My illness has taught me:
How to appreciate life, appreciate the small things. It’s amazing what beautiful things surrounds us everyday.
23. Want to know a secret? One thing people say that gets under my skin is:
Well at least its not cancer? or I do not think you are sick or ITS NOT LUPUS or compare my illness to someone elses. I have wanted to slap so many in the face.
24. But I love it when people:
Laugh, joke and ACCEPT the fact that I have Lupus and HUGS i loooooove HUGS! just not too tight my joints my be hurting.
25. My favorite motto, scripture, quote that gets me through tough times is:
Don’t have one at the moment.
26. When someone is diagnosed I’d like to tell them:
Things aren’t as bad as they seem, and there are people out here going through the same things.
27. Something that has surprised me about living with an illness is:
How caring people can be
28. The nicest thing someone did for me when I wasn’t feeling well was
Calling and texting me when I am in the hospital and sending me words of encouragement.
29. I’m involved with Invisible Illness Week because:
I want people to know they are not alone.
30. The fact that you read this list makes me feel:
Good about myself and this movement, and hoped you learn something new.