30 Things you did not know about my Invisible Illness: Lupus & ME
1. The illness I live with is:
2. I was diagnosed with it in the year:
3. But I had symptoms since:
4. The biggest adjustment I’ve had to make is:
Getting use to chronic pains, Constant hospital visits, Taking lots and lots of pills, surgery, being bed bound, finding something new that my lupus has caused.
5. Most people assume:
I am very healthy and I am all happy and that I am not really in pain.
6. The hardest part about mornings are:
Fighting to get up, all the pain in the morning is awful I hate mornings with a passion.
7. My favorite medical TV show is:
I have no idea, i love the ID channel lol and cartoons.
8. A gadget I couldn’t live without is:
9. The hardest part about nights is:
Insomnia, pain, knowing that I am not getting enough sleep and dreading the pain that the morning will bring.
10. Each day I take __ pills & vitamins:
I’m taking 10 pills. I should be taking around 15+ but my tummy has not been doing so well.
11. Regarding alternative treatments I:
I’m down for anything that will help
12. If I had to choose between an invisible illness or visible I would choose:
I would chose neither, I would chose to be healthy. But the again I would stay with that I have I feel that God has given me this path and I would rather have me walk it then someone I love.
13. Regarding working and career:
Worried. Because my illness slows me down, it makes me weak. I worry I might not make it to a place where I want to be or do an amazing job. I do not feel good enough.
14. People would be surprised to know:
The seriousness of my disease, how much stress and panic I am under. My range of emotions and health. My life is a roller coaster.
15. The hardest thing to accept about my new reality has been:
I’ll never have what you call a “normal” life, and to have a family in the future scares me because I do not feel I am capable of providing for my family. Will I make a good mother/wife? Do I make a good girlfriend/friend/daughter/sister now?
16. Something I never thought I could do with my illness that I did was:
Walk a 5k, work, travel
17. The commercials about my illness:
Not really any commercials out there.
18. Something I really miss doing since I was diagnosed is:
Sleeping, going out on the weekends, waking up feeling rested.
19. It was really hard to have to give up:
My weekends, fatty foods, McDonald french fries, my hair
20. A new hobby I have taken up since my diagnosis is:
Bringing Lupus awareness
21. If I could have one day of feeling normal again I would:
GO crazy with joy and have a great day, bbq party at my house!
22. My illness has taught me:
How to appreciate life, appreciate the small things. It’s amazing what beautiful things surrounds us everyday.
23. Want to know a secret? One thing people say that gets under my skin is:
Well at least its not cancer? or I do not think you are sick or ITS NOT LUPUS or compare my illness to someone elses. I have wanted to slap so many in the face.
24. But I love it when people:
Laugh, joke and ACCEPT the fact that I have Lupus and HUGS i loooooove HUGS! just not too tight my joints my be hurting.
25. My favorite motto, scripture, quote that gets me through tough times is:
Don’t have one at the moment.
26. When someone is diagnosed I’d like to tell them:
Things aren’t as bad as they seem, and there are people out here going through the same things.
27. Something that has surprised me about living with an illness is:
How caring people can be
28. The nicest thing someone did for me when I wasn’t feeling well was
Calling and texting me when I am in the hospital and sending me words of encouragement.
29. I’m involved with Invisible Illness Week because:
I want people to know they are not alone.
30. The fact that you read this list makes me feel:
Good about myself and this movement, and hoped you learn something new.
5 thoughts on “Invisible Illness Week – 30 Things you did not know about Lupus & Me”
You go girl! In the words of Drake, I’m so I’m so I’m so proud of you!
Thank you so much!!! 😀
We love you, Ally! 🙂
Love, Emily, Jason, Aidan and Connor
Ally, it is a blessing having you as our daughter. Be faithful and courageous. Do not hate, appreciate! Know that you are a good and precious daughter and a sweet and nice sister. Since you are good to your family, we are positive that you are also a good friend and great girlfriend. That means, you will be a wonderful wife and an excellent mother when God sends those blessings to you. Meanwhile, count your blessings! We love you so much, Dad and Mom.
We are so proud of you, WmissU, WloveU….your godparents from spain……huggs andd besines..Andy & Grace .;-)