Lupus 5K Walk for Lupus Now 2011
My name is Ally Gomez….
I am 24 years old and I was recently diagnosed with Lupus.
I had never heard of the disease and probably you have not heard of it until now.
There are various types of Lupus, but the one I have is Systemic Lupus Erythematosus, which is an autoimmune connective tissue disease that can affect any part of the body. In summary, my immune system attacks my body cells and tissue, resulting in inflammation & tissue damage. SLE most often harms the heart, joints, lungs, blood vessels, liver, kidneys, and nervous systems.
I was diagnosed in August 2010 and got a second opinion earlier this year. All pointing to Lupus. It all started after I returned from a trip to Disney. I had spent every day out in the sun for hours and well Lupus patients should not be out in the sun. I started to get joint pain in my hands and then it made its way up my arms and eventually spread throughout my whole body. By the time the pain was horrible, I was immobile. My mother had to pick me up from bed, bathe me, dress me, brush my teeth, and move me to be more comfortable. I lost 15 pounds and for a whole month I was in and out of the doctor’s office trying to figure out what was wrong. Once I got a fever of 105, a swollen eye and the pain was unbearable, I ended up in the ER. In the ER, they were perplexed as well but were eventually able to diagnose it as Arthritis but suggested I see a Rheumatologist because it might be more serious. And it was.
There is a lot that happens with Lupus patients and one of those things is a complete 360 on your life.
Sometimes, I have to cancel on people because I cannot get out of bed, my body is just too weak. I want to go but my body cannot. Sometimes, I start a project and I do not finish because I get headaches or once again my body needs more rest. Sometimes, I cancel outings that take place outside because I will get a flare if I stand out in the sun too much. Sometimes, I ask if a place has an elevator because stairs have become my enemy. Sometimes, I forget simple facts or totally blank out. Sometimes, I get depressed and I cry. Sometimes, I carry a cane to help me walk. Sometimes, I feel misunderstood.
Everyday, I have pain. Not horrible pain, but pain nonetheless. Everyday, I take medication. Everyday, I have to weigh every choice by how it will affect the rest of that day or week.
But everyday, I feel loved. Everyday, I have love ones who support me 100% and are taking this journey with me. When I am tired, sick, sad, they are there. Everyday, I laugh. Everyday, I thank God for the day he has given me.
My Family, Friends & I will be participating in the 2011 Walk for Lupus Now in Houston, TX. I would love it if you could join us or sponsor us! Any amount helps and I would greatly appreciate it!
Your collaboration will help in finding a cure to treat all of us! The 1.5 million Americans who have lupus. No one should have to go through this alone.
Please keep my family, Alex & I in your prayers because they are going through this with me. Also, your words of encouragement are always welcome not just for me but also for my family.
Thank you for reading this and for your love and support.
May God bless you!
10 thoughts on “2011 Lupus 5K Walk for Lupus Now – Houston”
I am so proud of you… your gifts, your strength, your perserverance… you’re always in my heart Ally… and always seen by your Father:)
Ally! You are so wonderful! You have such a big, strong heart, and I am happy to have you as a friend! After reading this, I just wanna run to Texas and give you a great big hug! 🙂
Oh Nell!! You are the sweetest and how did you know that I love hugs. I believe that Hugs are the best thing a sick person can have after all I am not contagious hehehehe 🙂
wow! i had no idea. thanks for sharing your story. i think a trip to houston is in order! how far is it from memphis?
Its like 14 hrs or so away its far.
We met in Memphis (Mark worked w/ your Papi @IP-remember?) We just received your email and were sad at reading the news of your tribulations w/ Lupus. Take care of yourself and keep reading up about how to stay ahead of Lupus. You are young and strong and can beat it. 🙂 I sent you & your parents an email with links to webpages regarding “Natural/Organic lifestyle” with Lupus. Hope it helps.. We’re counting on you getting better! 🙂 Here’s to wishing you the best! Besitos & hugs! Carmen & Mark
Thank you Carmen! Thank you so much for the links you sent me and your well wishes 😀
“The Lord is close to the brokenhearted and saves those who are crushed in spirit”. Psalm 34:18
You are very special to the Lord and also to me. Be strong!Take care and God Bless!!
Thank you so much Father Jolly!
Ally-san, I miss you so much! I hate that you’ve been diagnosed with Lupus. I love you sooooo much! If I could get to Texas I would walking right along with you! Maybe I can work it out for next year. For now, I’m cheering you and your family on from Memphis! Love you, Penguin!